Post episode 1 de-brief

Ok. So for those in Australia, last night was the airing of episode 1 of “Kids on Speed?” The documentary that my family took part in last year.
We decided to put the boy to bed and then watch it on our own because we weren’t sure what to expect yet and wanted to make sure that we had space and time to process it ourselves first.

Once I got over the initial important things like, “oh my god, am I really that chubby!?” And of course, “ugh is that really what my hair looks like?” And the standard, “wow I had no idea my voice sounded like that!” reactions, I was ready to settle down and really watch it.

This documentary would have been really interesting and informative even if I wasn’t in it. πŸ™‚ So much so that when the specialists were all together discussing my son and the pead burst forth with something like, “this kid is functionally autistic” and “we’ve rarely seen a case where a child is so disabled by his disabilities”, I gasped and started crying as if I didn’t know what was coming!
It was so interesting to see our family from the outside and I am happy to report there was nothing to be ashamed of. That goes for all the families involved. It was so great to see that other people have similar struggles to ours and the producer handled all our footage with such amazing respect and honesty.

Some debate has opened up on the ABC website and on twitter #kidsonspeed (I hope that’s right. I haven’t quite got my head around the whole twitter thing just yet!). Already we’ve had some really great and mostly supportive feedback for the programme which is awesome.
For myself, I’m really looking forward to seeing how it all unfolds over the next couple of weeks, not only for the other families but also ourselves. Sometimes when you are living the action everyday, it’s hard to really see the changes.

If you are in Australia and you follow my blog, I would highly recommend seeing this series through the ABC I-view website. If you have seen it, please don’t hesitate to comment and ask me anything or tell me what you think, bad or good, just keep it respectful! πŸ™‚

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9 Responses to Post episode 1 de-brief

  1. Andrea says:

    I applaud your courage and determination to help your beautiful son! I was very moved when I watched the program last night.and also still shocked for some reasons with what I had seen on the show in this first episode, all the raw emotions and pain, even though I had expected them. You are so brave to be open on this.

    I await eagerly to see what had happened to have helped your son, your husband and You. I met a lady at a support group this morning, her son is 21 years old. She told me to hang in there as our kids will get there because they have such loving parents that we are and her son is testimony to that as he had overcome a lot of odds in his own ways and brings tremendous joy to her family.

    We cherish every moment of joy our kids bring us and the challenges too!

    • KL says:

      Thank you Andrea πŸ™‚ I’m really glad you’ve found some great success stories and met some awesome supportive people. I’m also always appreciative of your feedback and information. πŸ™‚ keep at it.

  2. Hi there! My name is Cameron and I have a quick question about your blog! I was wondering if you could please email me when you have a moment. Thanks so much! I hope you have a great day. πŸ™‚

  3. HB says:

    You are such an inspiration to all special needs mums πŸ™‚ looking forward to watching more. Really hope the show tells the truth about ritalin and doesn’t ‘feed the trolls’ as they say πŸ˜‰

  4. Andrea says:

    Hi Kathryn,
    I watched episode 2 on TV on Thursday and felt so glad the doctor had hit the “Sweet Spot”. What a difference in how he is able to sit and do work with you seating on the sofa next to him and you did not have to be at him all the time to bring him back to task.
    I watched this episode 2 online again today and had some very strong feelings at what the experts said on the show. Whilst the specialists have a wealth of experience and can offer a parent on what alternate methods can be used, it is ultimately the parents who understands the child (as you have known him since birth and deals with him 24/7) and who makes the difference in the child’s behaviour.
    Sam, the teaching experts, said she could not help you teach Corey, it must have been devastating to hear that from “the expert”. What Sam lack is the time to understand Corey and adjust her teaching methods to suit Corey. But take heart in her comments that you “have dealt with Corey much better than any professional she has ever come across” and that she had found no gaps in Corey’s learning. These comments are salutations to you and Jade for having spent so much efforts to help him and educate him and seeing the success from it. You have done right to stop trying to help him stay in the system but take him out to calm him down so that he can then learn (even if it had been so tough to do so for both you and little Corey). With that in the background and having set his foundation, when you are finally able to reach that “sweet spot” and have Corey being able to progress emotionally and socially, you don’t have an education gap that could give him another dimension of feeling inadequate.
    I do not appreciate Prof Dadds’ comments that Corey have been wrapped in a cotton wool world and that he has not been put in situations that allowed him to have blow up all the time. It sounded like he is attributing this to you. What he is unable to appreciate is that exposing Corey to situations which allow him to blow up all the time will definitely damage him further and even to an extent that is beyond repair. I don’t think you have done anything wrong in protecting Corey from further damage. When he is ready, whether with medication or with maturity, you can put him back into this “world” where he can then learn to socialise.
    I think you and Jade have done the best you could all these years and seeing rewards now. With the ‘sweet spot” achieved, Corey will blossom and learn very quickly. He is such a smart boy, which coming out clearly in the show.
    Looking forward to watch episode 3 …..
    Keep smiling!
    Andrea

    • KL says:

      Andrea thank you so much. Not only for noticing all of that but also for saying it. I agree with you completely on everything you have said. To be fair to prof Dadds, I will let you know that he actually came back to us in our next appointment and said that the more he thought about what I said in response to his ‘cotton wool world’ comment, the more he realised that I was right. He admitted that he likes to move things along fast for these kids to try and get the best result, but that it may not be appropriate in some cases like with Corey. Still working towards that sweet spot but really starting to see it!

    • Anonymous says:

      I completely agree with everything you’ve said above too. Particularly about the cotton wool comments. There reaches a point where some space is just necessary.

  5. Andrea says:

    Hi Kathryn,

    I am glad Prof Dadds came around to see the situation and actually told you that you were tight. It feels great when the professionals finally agree with you, isn’t it? We often don’t get enough respect for the pains and heartaches we go through to help our children. Considering we are not professionals, we are doing well. I hope all parents with special needs kids do not get put down by the professionals, we have to believe we have tried our best and made the best decisions under the circumstances and continue to find ways to help our kids.

    Andrea

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